Perplexing Presentations & Fabricated and Induced Illness/Disorders in Children
RELEVANT LOCAL INFORMATION
AMENDMENT
In November 2021, Professional Guidance on the Management of Perplexing Presentations (including Fabricated or Induced Illness) was added into Relevant Local Information.Glossary
FII | Fabricated or Induced Illness |
FII/D | Fabricated or Induced Illness/Disorder |
I.V lines | Intra-venous lines |
IFD | Integrated Front Door – Bedford Borough Council Children’s Services Office hours: 01234 718700Out of hours: 0300 300 8123 Email: Multi.Agency@bedford.gov.uk |
MASH | Multi-Agency Safeguarding Hub – Luton Council Children’s Services Office hours: 01582 547653Out of hours: 0300 3008123 Email: mash@luton.gov.uk |
ARH | Access and Referral Hub - Central Bedfordshire Council Children’s Services Office hours: 0300 300 8585Out of hours: 0300 300 8123 Email: cs.accessandreferral@centralbedfordshire.gov.uk |
EWOs | Education Welfare Officers - Bedford Borough and Luton Council |
SAOs | School Attendance officers - Central Bedfordshire Council |
CEO | Chief Executive Officer |
NFA | No Further Action |
S17 | Children who are defined as being 'in need'. |
S47 | Child Protection Enquiries |
CVS | Covert Video Surveillance |
NSLEC | National Specialist Law Enforcement Centre |
NPCC | National Police Chiefs' Council (formerly known as the Association of Chief Police Officers (ACPO)) |
DSCF | Department of Schools, Children and Families - disbanded in 2010 and replaced by the Department for Education DFE |
This is a practice guidance based on local experience and national guidance: DSCF 2008 document 'Safeguarding Children in Whom Illness is Fabricated or Induced'.
The main changes as a result of the 2008 government guidance are:
- The emphasis on medical evaluation of the concerns;
- The requirement to report any concerns to the child's GP who will refer the child to a paediatric consultant at an early stage; where possible one paediatric consultant will act as the single point of contact for a sibling group;
- The paediatric consultant is the lead health professional and therefore has lead responsibility for all decisions pertaining to the child's health care;
- Any decision to use Covert Video Surveillance to be a multi agency decision at a Strategy Discussion/Meeting and it must involve the Police.
The Royal College of Paediatricians and Child Health's report 'Fabricated or Induced Illness by Carers: A Practical Guide for Paediatricians', which can be found at the Royal College of Paediatrics and Child Health website. This document provides more in-depth information for professionals, particularly those in health, describing the role of paediatricians and other healthcare professionals and recommending how they should work with professionals from other agencies.
The Royal College of Paediatrics and Child Health (RCPCH) Companion 2013 edition broadly defines a number of cases where clinical presentation is not adequately explained by any confirmed genuine illness, and the situation is impacting upon the child's health or social wellbeing as "perplexing presentation" or "medically unexplained symptoms". A subset of these would be the true "Fabricated and Induced Illness" whereas the rest could be due to carer anxiety, limited ability or distorted health beliefs. These latter could be resolved by addressing such needs.
In this protocol the word "disorders" has been added to the "illness" to specially include cases where the presentation involves a 'developmental disorder' with or without an 'illness'. This is denoted as FII/D.
1. Introduction
1.1 | Fabricated or Induced Illness (FII) is a condition whereby a child suffers or is likely to suffer harm as a result of her/his main carer's behaviour or actions intended to either induce an illness or a disorder that does not exist or grossly exaggerate an existing illness or disorder. |
1.2 | This involves:
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1.3 | Carer's behaviour associated with FII/D:
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1.4 | Concerns will be raised for a small number of children when it is considered that the health or development of a child is likely to be significantly impaired or further impaired by the actions of a carer or carers having fabricated or induced illness. |
1.5 | It is important that the focus is on the harm to the child's health and development and not on the demeanour or behaviour of carers except where specially linked to harm. |
1.6 | The range of symptoms and body systems involved in the spectrum of fabricated or induced illness are extremely wide, as can be the medical services in which children present, spanning primary, secondary and tertiary care. |
2. Impact on the Child's Health and Development
2.1 | Many of the children who do not die as a result of having illness fabricated or induced suffer significant long-term consequences. These may include long-term impairment of their physical, psychological and emotional development. |
2.2 | Fabrication of illness may not necessarily result in the child experiencing physical harm. Where children have not suffered physical harm, there may still be concern about them suffering emotional harm. Children may also suffer emotional harm as a result of an abnormal relationship with their mother or father (if he or she is responsible for the abuse) and their disturbed family relationships. |
2.3 | In their follow-up study of 54 children who were known to have had illness induced or fabricated, Bools et al (1993) found a range of emotional and behavioural disorders, and school related problems including difficulties in attention and concentration and non-attendance. These difficulties were present both in children who were living with their abusing parent and those who had been placed with alternative carers, suggesting that the need for treatment regimes which specifically address the child's ongoing needs may be necessary throughout childhood. McGuire and Feldman (1989) also reported a range of disorders in children known to have had illness fabricated or induced. These will depend on the age of the child; feeding disorders in infants, withdrawal and hyperactivity in pre-school children and direct fabrication or exaggeration of their own physical symptoms by older children and adolescents. |
2.4 | Whilst it is well documented that children who have been abused or neglected are likely to suffer impairment to their health and development, it cannot be assumed that all children suffering impairment have been abused. Where there are concerns about the reasons for a child's developmental delay, it is important to clarify the contributing factors and identify any underlying conditions. For some children the origins of their impairment or disability may be very complex with an underlying medical or developmental condition being further impaired by abuse or neglect. In these circumstances, detailed assessments are required to understand cause and effect (For further discussion, see Chapter 4: The Spectrum of Signs and Symptoms, Royal College of Child Health and Paediatrics, 2009). It is also described in the RCPCH Child Protection companion (2013). |
3. Procedure and Protocol
Initial Considerations
3.1 | This procedure needs to be followed in cases where there is concern that a child may be suffering or is likely to suffer Significant Harm resulting from a parent or carer's persistent attempt to fabricate, induce or exaggerate an illness, disorder (e.g. Autistic Spectrum Disorder) or disability (e.g. learning disability). |
3.2 | In these cases the onus should always be on what harm the child is suffering or is likely to suffer rather than the behaviour of the carer. The harm to the child needs to be categorised as physical, emotional, sexual abuse or neglect. |
3.3 | In considering harm or the likelihood of harm in the context of an illness, attention should focus on:
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3.4 | In the context of fabrication, inducement or exaggeration of a developmental disorder or disability, consideration should focus on:
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3.5 | On occasions, a parent/carer's behaviour may amount to criminal activity. For example:
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3.6 | Where a crime is suspected (as in 3.5) when a child is in the hospital (or any other setting) the Police must be consulted as soon as suspicion arises. Staff must not be tempted to gather more evidence to firm up their suspicions before contacting the police as such evidence may not be admissible in court. |
3.7 | In a non-medical setting, (e.g. school or nursery), harm may be caused through:
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4. Pre-Referral Action (Action prior to referral to Social Care or Police)
All Agencies (Common Steps) |
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4.1 | A range of professionals in different agencies who work with children may, in the course of their duties, become concerned about fabrication or exaggeration of an illness, disorder or disability. Professionals should follow this protocol interpreting it in their own professional context. However, professionals within health and education settings are more likely to be faced with incidents of FII/D. Therefore, there is particular mention of health and education action in successive paragraphs. The Children's Social Care and the police are also mentioned because of their statutory role in investigating the cases. |
Recognition |
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4.2 | Concerns arise when a professional observes:
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Sharing of concerns with the carer and involving children |
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4.3 | Research has shown that over 50% of children in whom illness is fabricated or induced are aged under 5 years and therefore they are unlikely to be directly involved in discussions about the nature of their abuse. |
4.4 | Professionals will need to determine how best to include children and young people in any decision making and planning processes. These decisions should be taken as part of the overall plan for therapeutic work with the family, factoring in the family relationships which have enabled the child to be abused. Children and young people should be advised that ultimately, decisions will be made based on all available information contributed by themselves, professionals, their parents and other family members. |
Information sharing |
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4.5 | In deciding what information to share, professionals should consider their legal obligations, including whether they have a duty of confidentiality to the child. Where there is such a duty, the professional may lawfully share information if a competent child (or the parent of a child who lacks competence) consents of if there is a public interest of sufficient force. This must be judged by the professional on the facts of each case. Where there is a clear likelihood of significant harm to a child, or serious harm to adults, the public interest test will almost always be satisfied. |
4.6 | The child's best interests must be the overriding consideration in making decisions about sharing information. Please refer to the government practice guidance, Information Sharing: Advice for practitioners safeguarding services to children, young people, parent and carers - March 2015. Any decision on whether or not to share information must be properly documented. |
4.7 | However, cases of FII/D are quite challenging and pose unique difficulties. |
4.8 | It is important to note that where a parent/carer is being genuinely overanxious about their child's minor illness, health or development, the child's symptoms may appear to be over amplified. In such cases all efforts should be made to reassure the parent/carer. |
4.9 | However, on occasions it may be an elaborate, calculated and persistent act or behaviour on the part of the parent/carer. In such cases, sharing FII/D concerns with the parent/carer at the outset may not be in the best interest of the child. By informing the parent/carer of the suspicion of FII/D prematurely, harm maybe perpetuated or increased for the child, in as much as the parents/carers may change doctors/professionals or withdraw the child from school or indeed perpetrate more harm to the child. At no time should a concern about FII/D be shared with the parent/carers, until there is sufficient evidence to enable decisive action ('Safeguarding Children in whom illness is fabricated or induced'; DCSF; 2008; para 3.13; 4.11). A decision about when and how to share such concern with the parent/carer should be planned at the Strategy Meeting. |
4.10 | However, if such a child has undergone any medical investigations, the professional must inform the parent/carer of the result of all tests, explaining the rationale for any medical intervention, while admitting that no satisfactory explanation has been found. |
Recording |
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4.11 | Professionals must keep an accurate record of contemporaneous notes including facts, opinion and reasons for not sharing their suspicion of FII/D. Professionals should retain all letters and correspondence. correspondence. Professionals must make clear in the records what is being reported by the parent/carer, the child and any direct observations of the child's presentation and interactions between the parent/carer and the child. Professionals should always record any information or/and advice provided to the parent/carer, best practice would be to follow this up in writing. A significant events Chronology should be commenced when the professional is first alerted to concerns, pulling through historic events. The Chronology should be used to support a factual analysis of potential patterns and themes as part of an assessment and planned interventions/referrals. |
Consultation within agency |
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4.12 | Professionals identifying FII/D concerns should share their concerns with a senior colleague and/or a professional designated for safeguarding children, within their organisation. After the consultation discussion, the decision maybe that suspicion may not be well founded or that more information/observation may be required. In some cases, the discussion will result in a referral to the police or the children's social care. |
Consultation with other agencies |
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4.13 | If the situation warrants, consultation with professionals in another agency may be required to clarify FII/D concerns further. For example, a school may contact a GP or School Nurse to build a shared understanding of the concerns identified. It is essential that all professionals involved agree a coordinated approach, clearly identifying who is leading on the FII/D concerns. |
4.14 | If a paediatrician is not already involved, the child's GP should make a referral to a hospital paediatrician. Where the concerns relate to a developmental disorder or disability, the GP should refer to a community paediatrician. |
N.B.A referral without proper deliberation may be detrimental, particularly if it falls short of the threshold for decisive action. The perpetrator may evade further suspicion by various means, but the harm to the child may continue. | |
Informal consultation with Children's Social Care (CSC) or Police |
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4.15 | If in doubt about the level or nature of concern, an informal consultation with the relevant Children Social Care (details above) or the Police could be helpful. |
Referral Process |
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4.16 | This is outlined in paragraph 5 below. |
5. School/Nursery/Other Educational Settings
5.1 | Concerns may arise from frequent non-attendance at the school, nursery on medical grounds but where a child looks well and healthy. The School/nursery/setting may be asked to restrict the child's diet, participation on the grounds of a medical condition. Symptoms maybe described, which are not observed at school e.g. child having several fits a day, but not a single one at school, or signs/ symptoms of a developmental disorder or disability which are not observed at school. In extreme cases a child may be withdrawn from the school. |
5.2 | In these situations, where a professional is concerned that a child is being harmed or likely to be harmed, the concern should be discussed with a senior member of staff or a staff with the designated role for safeguarding children |
5.3 | The designated officer/senior member of staff should attempt to substantiate concerns by liaising with other agencies and professionals e.g. EWOs/SAOs (DCSF para 3.88 & 3.89). Contacting the GP may also help verify a concern about non school attendance on the reported grounds because of a medical illness. If this is not possible then a referral to the relevant Children's Social Care should be made. |
5.4 | In cases where there is a lack of clarity and several professionals are involved, a Professionals' meeting should be called to clarify issues and coordinate action as deemed necessary, making sure it is clearly documented who remains responsible for the case. The relevant Children Social Care may also participate in order to evaluate the evidence for themselves at first hand. |
5.5 | Monitoring: Ongoing monitoring by all professionals will be necessary in borderline cases or cases where the situation improves after supporting the carer or when an illness is being investigated by a paediatrician and the case has not been referred to the relevant Children Social Care. If at any time during monitoring; the concern remains or re-emerges, a referral must be made, by the designated staff or staff who initiated the concern, to the relevant Children Social Care above. |
5.6 | Referral: If after initial discussion and information sharing, the concern remains or increases, a referral must be made as in Section 7, Referral. |
6. Health
6.1 | This is a generic protocol for all healthcare professionals. Individual healthcare professionals, particularly those in a hospital setting should also refer to the government guidance, Safeguarding Children in Whom Illness is Fabricated or Induced (2008) and RCPCH Guidance (2009) for details in specific circumstances and the RCPCH Child Protection Companion 2013 in chapter 'Perplexing presentation'.
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6.2 | A healthcare professional who suspects FII/D should discuss their concerns with a senior colleague within the discipline or department to confirm if suspicion is objective. |
6.3 | If suspicion continues, the Named Doctor/Nurse/Professional for safeguarding children within the organisation should be consulted for advice, support and expertise. Health practitioners should not normally discuss their concerns with the parents/carers at this stage (see Safeguarding Children in Whom Illness is Fabricated or Induced (2008), para 3.13). Where appropriate, the Designated Doctor/Nurse can be consulted for further advice. |
6.4 | Health professional should consider gathering information from healthcare professionals in other settings involved with the case, to establish a shared understanding and a clearer picture. |
6.5 | The 'information gathering' may involve consulting with a nursery, school or other settings who may know the child. |
6.6 | Where a Paediatrician is not already involved, the healthcare professional (usually the GP) must make a referral to a hospital paediatrician for an alleged illness or to a community paediatrician for an alleged developmental disorder or neuro-disability. Normally, the outcome of a paediatric referral should be awaited, but where a healthcare professional remains sufficiently concerned, a referral to the relevant Children Social Care should be made |
6.7 | Where a number of professionals are involved and there remains a lack of clarity, a professionals' meeting should be called to consider all aspects of the case and to aid decision making regarding making a further referral. |
6.8 | Where a FII/D concern has arisen while the child is in hospital, all records, investigations and treatment must be secured immediately and early consultation with the Police made. Where there is suspicion that a criminal act may have been committed or lack of clarity about the nature of the case, advice can be sought from Named or Designated Doctor/Nurse, by the consultant paediatrician who is providing hospital care to the child. The consultant paediatrician should be responsible for the management of the case from the FII/D point of view and, it must not be delegated to a junior staff member. Where a Consultant from another department within the hospital has concerns, s/he should refer to a Consultant Paediatrician. Where an insufficient explanation is found after reasonable medical investigations locally, referral to a tertiary specialist centre may be necessary to rule out the possibility of any rare causes and ensuring that there is direct and clear inter-professional communication (this must not be relayed through the parent/carer). |
6.9 | In some cases gaining information from other health professionals or school may be necessary to build a clearer picture. |
6.10 | Professionals' meeting - see Paragraph 5.4. |
7. Referral
Immediate Protection: |
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7.1 | If at any point there is medical evidence to indicate the child's life is at risk or there is a likelihood of serious immediate harm, an application for an Emergency Protection Order or Police Protection powers should be used to secure the immediate safety of the child. |
7.2 | Where necessary an informal discussion should take place either with the police or children's social care and action taken accordingly. This can be done at the professional meeting stage, by inviting them to attend. |
7.3 | Whilst the family's agreement, wherever possible, should be sought before making a referral to the relevant Children Social Care, this should only be done where such an agreement will not place a child at increased risk of Significant Harm. |
7.4 | Referral should be made at any of the stages above when there is sufficient concern and waiting any longer is judged to be more detrimental to the child. Referral will need to be made as child protection (s47) in writing stating that the suspicion is about fabricated or exaggerated illness or disorder as the case may be and indicating whether this concern has been shared with the carer. |
7.5 | To the Police: When a crime is suspected or there is risk to life, a referral to Police must be made. When in doubt, it is important to discuss your concerns with the Police Child Abuse Investigation Unit as they may provide advice and expertise for evidence gathering. Do not be tempted to gather non-medical evidence with a view to make a stronger case without first consulting with the police. There are strict requirements about what evidence will be admissible in court, should it become necessary to take that step. Where a decision is made to refer to the police it will be important to inform senior management in the referring organisation and notify the MASH in Luton, the ARH in Central Bedfordshire or the IFD in Bedford Borough too. The Police will decide what action to take. It may become entirely a Police criminal investigation in which case that will supersede this multi-agency protocol. In other cases, Police may work jointly with Children's Social Care and others. |
7.6 | To the Police for urgent investigation (Covert or Overt Surveillance): In a hospital setting, where there is evidence of risk to the life of a child from a carer's behaviour or action, the paediatrician involved should make an urgent referral to the Police. The Police may decide on a range of actions including; mounting a covert or overt surveillance to gather further evidence either way to resolve the issue (see Section 11, Covert Video Surveillance). It would primarily be a police decision but, in consultation with the MASH in Luton, the ARH in Central Bedfordshire or the IFD in Bedford Borough and the Paediatrician involved. The CEO of the hospital or a senior manager must be informed if such decisions are made. It would remain a police investigation in terms of resources, equipment and expertise. |
8. Post-Referral Action by the MASH in Luton, the ARH in Central Bedfordshire or the IFD in Bedford Borough
8.1 | Initial Response: Upon receipt of a referral, the relevant Children Social Care will make a decision within one working day and inform the referrer of their decision. It may either result in no further action, with advice, a Single Assessment or an urgent Strategy Discussion. At the end of this, where the concerns are unsubstantiated, the case may be concluded as 'No Further Action (NFA)' and the referrer informed. Where concerns remain, either an assessment under Section 17 or a Section 47 Enquiry may need to be undertaken. |
9. Strategy Discussion / Meeting
9.1 | If there is reasonable cause to suspect that the child is suffering, or likely to suffer Significant Harm, the relevant Children Social Care should convene a Strategy Discussion/Meeting involving all the key professionals. |
9.2 | Unless there is an emergency, this should be a Strategy Meeting, chaired by a manager from the relevant Children Social Care. |
9.3 | If emergency action is the required response, for example, if a child's life is in danger through poisoning or toxic substances being introduced into the child's blood stream, or by suffocation, an immediate Strategy Discussion should take place. |
9.4 | The Strategy Discussion/Meeting requires the involvement of key senior professionals responsible for the child's welfare. At a minimum, this must include Children's Social Care, the Police and the paediatric consultant responsible for the child's health. |
9.5 | One of the considerations should be planning how much and when to share concerns with parents/carers. |
9.6 | Additionally the following should be invited to Strategy Meetings as appropriate:
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9.7 | Where the Strategy Discussion/Meeting decides that a Section 47 Enquiry should be initiated, see, Section 47 Enquiry and Single Assessment. |
9.8 | Decisions about undertaking covert video surveillance and keeping records should be made at a Strategy Discussion/Meeting (see Section 11, Covert Video Surveillance). Any such decision should be clearly recorded, with reasons given why it is necessary. |
9.9 | It may be necessary to have more than one Strategy Discussion/Meeting. This is likely where the circumstances in the child's case are very complex and a number of discussions are required to consider whether and, if relevant, when to initiate a Section 47 Enquiry. |
9.10 | For some children it may be necessary to institute legal proceedings either immediately or soon after the Child Protection Conference has ended. |
10. Section 47 Enquiry and Single Assessment
10.1 | When it is decided that there are grounds to initiate a Section 47 Enquiry as part of a Single Assessment, decisions should be made at the Strategy Discussion about how the Section 47 Enquiry will be carried out, this will include:
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11. Covert Video Surveillance
11.1 | The use of covert video surveillance (CVS) is governed by the Regulation of Investigatory Powers Act 2000. |
11.2 | After a decision has been made at a Strategy Discussion to use CVS in a case of suspected fabricated or induced illness, the surveillance should be undertaken by the Police. The operation should be controlled by the Police and accountability for it held by a Police manager. The Police should supply and install any equipment, and be responsible for the security of and archiving of video tapes. |
11.3 | The decision will only be made if there is no alternative way of obtaining information to explain the child's signs and symptoms and its use is justified on the medical information available. |
11.4 | The primary aim of the surveillance is to identify whether a child is having an illness induced; and the obtaining of criminal evidence is of secondary importance. The safety of the child is the overriding factor. |
11.5 | Police Officers planning surveillance in cases of suspected fabricated or induced illness may seek advice from the National Crime Agency. |
11.6 | All personnel including nursing staff who will be involved in its use should have received specialist training. |
11.7 | The relevant Children Social Care should have a contingency plan in place, which can be implemented immediately if covert video surveillance provides evidence of the child suffering Significant Harm. |
12. The Initial Child Protection Conference
12.1 | There may be the need for more than one strategy discussion to arrive at a better decision. The initial child protection conference should be convened within 15 working days of the last strategy discussion. |
12.2 | In addition to the relevant medical staff, social care, police and other staff involved with the case, the presence of a medical consultant with expertise in this field should be considered. |
12.3 | Children should be involved in ways appropriate to their age and understanding. This can be decided after discussing this with the child in a sensitive manner taking the nature of the case into account. Although parents /carers should normally be invited to attend, exceptionally it may be necessary to exclude one or more family members from all or part of the conference. (See Safeguarding children in whom illness is fabricated or induced (HM Government 2008); page 49; para 4.48). |
References
- Safeguarding Children in Whom Illness is Fabricated or Induced: Department for Health: 2008;
- Safeguarding Children in Whom Illness is Fabricated or Induced; Department for Children School & Families; 2008;
- Perplexing Presentations (PP) / Fabricated or Induced Illness (FII) in Children RCPCH guidance March 2021.